Cyclists cycle 600 miles to raise awareness of bone marrow transplant needs

A team of eight biked 600 miles in 11 days to raise awareness of bone marrow transplant needs, and the team stopped in Wawatosa on Monday to visit Frodetert Hospital and Medical College of Wisconsin. According to Freudert, Milwaukee is the hub for all the bone and blood marrow transplants in the world. . The International Center for Blood and Marrow Transplant Research (CIBMTR), located within the Froedtert & MCW Clinical Cancer Center, contains the world’s largest database of blood and marrow transplant outcomes. The diagnosis is leukemia that needs transplants,” said Alison Paus, a clinical guide and nurse for the bone marrow transplant unit in Froederter. “It’s very important. We are a big center. We want to say over the past year 350 to 400 transplants per year.” Paws is herself a donor. She said she helped save the life of a 31-year-old with a donation. Members of the cycling team have their own stories.” I was diagnosed with a very rare disorder of the bone marrow called myelofibrosis (fibrosis of the bone marrow). As a result, I started looking for a donor,” Marsha Crohn told WISN 12 News. “We added probably close to a thousand donors on my behalf who wanted to see if they could save my life.” Six years later Crohn is still searching. During her operation “I have two of the 10 rare HLA markers you need to find a donor,” Crohn said. “My transplant doctor said you have less than a 1% chance of finding a donor,” Crohn said. Crohn’s struggles with those odds and is working to raise awareness as the team’s journey through the Midwest passes. “I say try or die,” Crohn said. And if you have to try, know you will.” If you’d like to register to be on the donor registry, click here.

A team of eight bikes 600 miles in 11 days to raise awareness of the needs of a bone marrow transplant.

The group stopped in Wawatosa on Monday to visit Frodetert Hospital and Medical College of Wisconsin.

According to Froedtert, Milwaukee is the center for all blood and bone marrow transplants in the world.

The International Center for Blood and Marrow Transplant Research (CIBMTR), located within the Froedtert & MCW Clinical Cancer Center, contains the world’s largest database of blood and marrow transplant outcomes.

“There are a lot of patients who are diagnosed with leukemia and need transplants,” said Alison Paus, a clinical educator and nurse of the bone marrow transplant unit in Freudert. “It’s very important. We’re a big center. We want to say over the last year 350 to 400 transplants a year.”

Baws herself is a donor. She said she helped save the life of a 31-year-old by making a donation.

Members of the cycling team have their own stories.

“In 2016, I was diagnosed with a very rare disorder of the bone marrow called myelofibrosis (bone marrow fibrosis). As a result, I started looking for a donor,” Marsha Crone told WISN 12 News. “We may have added as many as 1,000 donors on my behalf who wanted to see if they could save my life,” he added.

Six years later, Crohn is still searching. During her operation, she discovered that the uncommon form of her cancer was much rarer.

“I have two of the 10 rare HLA markers you need to find a donor,” Crohn said. “My transplant doctor said you have less than a 1% chance of finding a donor.”

Crohn fights those odds and raises awareness as the team’s journey through the Midwest.

“I say try or die,” Crone said. “And if you must try, know you will.”

If you would like to register to be on the donor registry, click here.

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